Team Run For HD
Running to raise money and awareness for Huntington's disease!
Race Sign-up

Volunteer Donate Support Legislation

Volunteer For The Chicagoland Sunset Half Marathon, 10K, & 5K

Saturday, July 25th, 2015
Volunteer Shift: 4pm – 8:30pm

2046 Lakewood Blvd
Hoffman Estates, IL

Because Team Run for HD is the official charity partner for the Chicagoland Sunset Half Marathon, 10K, & 5K, we are seeking race day volunteers for tasks including checking in runners, passing out water, and presenting medals. In exchange, the race is providing promotional and monetary support to HDSA! If you're volunteering, please meet at the Team Run for HD tent at 4pm. Feel free to contact us at TeamRunForHD@gmail.com with any questions.

Support Legislation

Right now, your help is needed to get an important bill that will directly benefit HD families passed into law!

The Huntington’s Disease Parity Act (H.R. 842/S. 968) will revise outdated social security medical and evaluation criteria for determining disability and waive the Medicare two year waiting period, so individuals with HD can receive essential disability benefits they are often denied and receive critical health care in the early stages of the disease.

It only takes 5 minutes to make sure your voice is heard – use these forms to quickly and easily email your representative and email your senators (it will identify your elected officials and auto-populate a message for you!). Learn more about the bill, find your elected officials, and see who is already co-sponsoring the bill here.

Become an HDSA Advocate

Join the HDSA E-Advocacy list to receive emails about HDSA advocacy and opportunities to speak up for HD. Share your HDSA advocacy story to offer your perspective about the importance of legislation to help the Huntington’s disease community and inspire others to get involved!

News

New NOW ACCEPTING 2015 RUNNER AND VOLUNTEER SIGN-UPS

06.01.15

Runners and volunteers are needed to support Team Run for HD at the Chicagoland Sunset Half Marathon, 10K, & 5K in Hoffman Estates, IL on Saturday, July 25, 2015!

Team Run for HD runners will raise funds through pledges to support the many programs offered to HD families by the Huntington’s Disease Society of America Great Lakes Region. Runners will receive a discounted entry fee, training assistance, a top-of-the-line technical shirt, VIP gear check, a swag bag full of goodies, and post-race refreshments with the team!

Because Team Run for HD is the official charity partner for this race, we are also seeking race day volunteers for tasks including checking in runners, passing out water, and presenting medals. In exchange, the race is providing promotional and monetary support to HDSA!

Please consider joining the team and raising donations, pledging a runner, becoming a team sponsor, or volunteering on race day.



CHICAGO SKYLINE LIT UP IN BLUE DURING HD AWARENESS MONTH

05.17.15

Chicago HD Awareness Skyline

A grassroots effort organized by the HDSA Illinois Chapter was successful in campaigning for the downtown Chicago skyline to be lit up in blue during Huntington’s Disease Awareness Month! From May 17-22, numerous buildings including the Crain’s Chicago Business building, the 525 W. Congress/Van Buren Building, the Wrigley building, and the Blue Cross-Blue Shield building joined in with blue lights and messages spelling out “Cure HD.”

We are very proud of our pretty city for participating and excited that HD awareness received so much exposure. Thank you to everyone for signing the petition, sharing the #Blue4HD initiative on social media, and leveraging your networking connections!



TEAM RUN FOR HD NAMED AS RACE CHARITY PARTNER

04.27.15

We are very proud to announce that we are joining All Community Events, Alexian Brothers Health System, and the Village of Hoffman Estates as THE official charity partner for the 2015 Chicagoland Sunset Half Marathon, 10K, & 5K on July 25th!

What this means is that we will have an even bigger presence with the race to raise awareness for Huntington’s disease, and that a portion of each and every entry fee is being donated to HDSA! To fulfill our end of the bargain, we need to have extra volunteers on hand to help with race duties including checking in runners, passing out water, and presenting medals.

Please consider joining the team and raising donations, pledging a runner, becoming a team sponsor, or volunteering on race day.



TEAM RUN FOR HD GIVES A MIND IN QUICKSAND TWO THUMBS UP

04.10.15

We were very excited to attend the Chicago screening of A Mind in Quicksand in celebration of its public television release!

Read More

TEAM RUN FOR HD STARS IN FILM ABOUT 2014 GOAL RACE

04.03.15

Check out this video about the 2014 Chicagoland Sunset race and watch for us @4:54!

Read More

LUNDBECK JOINS TEAM RUN FOR HD AS A 2015 LAKE SHORE DRIVE SPONSORSHIP PARTNER

03.23.15

Lundbeck

Lundbeck, a pharmaceutical company headquartered in Deerfield, Illinois, has gifted a generous donation to Team Run for HD for our 2015 season! Lundbeck is committed to accelerating their work in central nervous system disorders such as Huntington’s disease, and we could not be happier to welcome them as a Lake Short Drive Partner. Learn more about Lundbeck and their work, and keep in touch by Twitter, or Facebook. Thank you, Lundbeck, for your continued support!



Turn the Chicago Skyline Blue for Huntington's Disease

01.01.15 - 03.31.15

Read More

SCREENING OF THE LION’S MOUTH OPENS DOCUMENTARY RAISES AWARENESS AND FUNDS FOR HD

01.31.15

A heartfelt thank you to all of our guests, sponsors, and volunteers for making our screening and discussion of The Lion’s Mouth Opens such a success!

Read More

The Team Run For HD Whiskey Challenge #WhiskeyShotsForHD

09.05.14

We need your help to raise awareness and money for Huntington’s disease! Are you up for the challenge?

Read More

Team Run For HD Co-founder Interviewed for Medical Journal

07.16.14

We're big in Iowa! We are so grateful to the University of Iowa HDSA Center of Excellence for their ongoing support, and the publicity they brought us with this article about Team Run for HD co-founder, Sara Rockwell!  Full Article

Team Run for HD to Speak at the Illinois HDSA Conference

03.01.14

The info-packed 2014 Huntington's Disease Society of America IL State Conference is March 22! Team Run for HD is honored to be one of the speakers this year, on the topic "Advocacy: Getting Creative with Social Media and Networking." See you there!

Events

Join us for some fundraising events around town.

Chicagoland Sunset Half Marathon, 10K, & 5K

SATURDAY, JULY 25TH, 2015 4PM

Our 2015 goal race will be the Chicagoland Sunset Half Marathon, 10K, & 5K in Hoffman Estates, IL on Saturday, July 25, 2015! And new this year, we are proud to be the official charity partner of the race! Please consider joining the team and raising donations, pledging a runner, becoming a team sponsor, or volunteering on race day.

Race Sign-up

Charity Miles Donations for Running, Walking, and Biking

Ongoing

Earn money toward neurological disease research every time you run, walk, or bike with Charity Miles! HDSA is not currently an option, but we are working on it! The more of you join, the more chance we have of being selected! In the meantime, consider choosing Parkinson's or Alzheimer's since they are similar to HD, and research for one benefits the others.
1. Download the Charity Miles app on your phone
2. Open the app, click the menu in the upper left, then click on Teams
3. Type #teamrunforhd in the search field and when it pops up, click the + icon to the right of it
4. Get moving!

Visit Charity Miles

iGive Donations for Shopping

Ongoing

Give to HDSA every time you shop online with iGive! Shop normally with over 1,400 favorite stores and they will automatically make a donation to HDSA when you purchase! You never pay more and they always show you how much you're raising before you buy. Just about anything you buy counts, and donations range from .5% to 20%, varying by store. A typical shopper raises over $100 per year!

Visit iGive

Past Events


Show Past Events

Run

Ready. Set. Go!!!

Run the Chicagoland Sunset Half Marathon, 10K, & 5K, with us

1. Create your DonorDrive fundraising page
2. At the end of DonorDrive registration, you will receive a code for a discount on the race entry fee
3. Register for the race through their website
4. Start training and fundraising!



Run a different race of your choosing

We also have runners doing a variety of events over the course of the year and across the Midwest; let’s work together! We can offer training support, fundraising materials, and a sense of camaraderie to keep you motivated. We will also send a tech shirt to wear on race day to show everyone the amazing cause you represent, and cheer signs for friends and family to wave so you can spot them in the crowd!

1. Create your DonorDrive fundraising page
2. Register for the race through their website
3. Start training and fundraising!

Past Runs

2014 Bank of America Chicago Marathon

October 12th, 2014

Chicagoland Sunset Half Marathon, 10K, & 5K

July 19th, 2014

Bayshore Marathon

May 24th, 2014

Illinois Marathon in Champaign-Urbana, IL

April 26th, 2014

2013 Door County 50-miler

October 26th, 2013

2013 Bank of America Chicago Marathon

October 13th, 2013

2013 Chicago Half Marathon + 5K

September 8th, 2013

2012 Bank of America Chicago Marathon

October 7th, 2012

2012 Chicago Half Marathon + 5K

July 22nd, 2012

2012 Rockford Marathon

May 20th, 2012

2011 Chicago Half Marathon + 5K

September 11th, 2011

Running FAQ


How Do I Go About Fundraising?

Fundraising with Team Run for HD is easy! You set your own fundraising goal and then we help you reach it. The first step is to sign up at DonorDrive (if you are running the Chicagoland Sunset Half Marathon, 10K & 5K click here, if you are running another race of your choosing, click here) and personalize your Team Run for HD donation page. Then start hitting up your friends and family, using this request template to get you started. You may also be able to donate some money that you won't even miss! Cash in the change jar, do some baby-sitting, pet-sitting, or odd jobs, sell some clutter on craigslist, or host a fundraising event. Get creative!

What If I'm Not a Serious Runner?

If you are a new runner, we will provide a training schedule, training tips, and encouragement. We have experienced runners who can answer any questions and will be setting up casual weekend group runs for those in the Chicagoland area. Team Run for HD will keep you motivated all season long and make sure you cross that finish line!

What's In It For Me?

If you have joined other run teams, you know they can be divided into two distinct categories: ones that give out cheap, scratchy t-shirts you immediately toss and ones that know better. We promise to be in the latter category…we're talking top-of-the-line technical shirts that you will wear again and again after race day! You will also receive a swag bag full of high-quality goodies! For those participating in the goal race, take advantage of our secure VIP gear check at our booth during the race, and stop by afterward for refreshments with the team!

About

Huntington's disease, HDSA, and us.

#TeamRunForHD #HuntingtonsDiseaseAwareness #CantStopWontStop

What is Huntington's disease?

Huntington's disease (HD) is a devastating, hereditary, degenerative brain disorder that results in a loss of cognitive, behavioral, and physical control, and for which presently there is no cure. Many describe the symptoms of HD as having ALS, Parkinson’s, and Alzheimer’s simultaneously. HD slowly diminishes the affected individual's ability to walk, think, talk, and reason. Symptoms usually appear between 30 and 50 years of age and progress over a 10 to 25 year period. Eventually, a person with HD becomes totally dependent upon others for his or her care. Every child of a parent with HD has a 50/50 chance of carrying the faulty gene. Today, there are approximately 30,000 symptomatic Americans and more than 200,000 at-risk of inheriting the disease.

About the Huntington's Disease Society of America

The Huntington's Disease Society of America is the premier nonprofit organization dedicated to improving the lives of everyone affected by Huntington’s disease. From community services and education to advocacy and research, HDSA is the world’s leader in providing help for today and hope for tomorrow for people with Huntington’s disease and their families. HDSA's network of chapters, affiliates, HDSA Centers of Excellence, social workers and support groups provides a seamless connection for help, education, and outreach to HD families and health care professionals across the United States. To learn more about Huntington's disease or to get involved in HDSA, please visit www.hdsa.org or call 1-800-345-HDSA.

About Team Run for HD

Team Run for HD is a group of people running to raise money and awareness for Huntington's disease! We have one goal race each year in Chicagoland, as well as satellite runners in other races of their choosing across the Midwest. Many people were already using running as a tool to fight HD, but each person was starting from scratch and doing it solo. Once we established an annual event, we were also able to draw runners who might not have participated otherwise. Team Run for HD is way to unify and multiply the participants' efforts, by offering training support, fundraising materials, and a sense of camaraderie to keep you motivated. Our runners are of all different ages and experience levels, doing races from 5Ks up to ultramarathons. What brings us together is using the ability to run as a way to provide help for today and hope for tomorrow to those affected by HD. We also organize community events throughout the year to boost our fundraising and to expand our reach even beyond the running circle.

About the Organizers

Team Run For HD is brought to you by the unstoppable duo of Sara and Rachel, with help from their HDSA friends! They met in 2005 when Rachel was offered a job where Sara worked specifically because the owner thought they would get along well together. He could not have been more right and they have been BFFs ever since! Huntington's disease runs in Sara's family, so this cause is very important to both of them. Sara started running to raise money for HDSA in 2011, with Rachel cheering loudly at the sidelines. Since their first race together, Sara has now run six marathons, and together with Rachel and the new running friends they make every year, they have raised over $40,000 for Huntington's disease, and recruited runners from coast to coast!

So if you want to reach out for any reason, now you know who will answer your emails at TeamRunForHD@gmail.com.

Give

Give to Team Run for HD; the cure starts here!

We are raising money for the Huntington's Disease Society of America (HDSA), which provides vital support and services to improve the lives of those affected by HD, and funds research to find a cure. You can also help out by donating goods, services, or your time. There is a way for you to help; the cure starts here!

Monetary Donations

A donation of any size will bring us closer to finding a cure for Huntington's disease and will provide help for today and hope for tomorrow to those affected by HD, through family services, education, advocacy, and research.

Donate Now

Corporate Sponsorship

We are seeking contributions of all levels, from a small in-kind donation, on up through our ultimate Lake Shore Drive partnerships. This is a great exposure opportunity for your company! There is a way for you to help; the cure starts here!

Great Perks for Every Level of Giving

LAKE SHORE DRIVE PARTNER: $2500 DONATION

  • Recognition in the HDSA Great Lakes Chapter newsletter, with readership of approximately 30,000 people across Illinois, Wisconsin, Indiana, Ohio, and Missouri
  • Promotion through all Team Run for HD social media outlets
  • Recognition in all Team Run for HD press releases to local media
  • Opportunity to display and/or sample your product or company literature at the event booth*
  • Company logo printed on reusable tote bags distributed to the team
  • Company logo printed on the official team t-shirts
  • Company logo printed on banner displayed at the event booth*
  • Opportunity to distribute company literature and/or product samples to all Team Run for HD participants
  • Priority recognition on the official website, www.TeamRunForHD.com

MAGNIFICENT MILE PARTNER: $1000 DONATION

  • Recognition in all Team Run for HD press releases to local media
  • Opportunity to display and/or sample your product or company literature at the event booth*
  • Company logo printed on reusable tote bags distributed to the team
  • Company logo printed on the official team t-shirts
  • Company logo printed on banner displayed at the event booth*
  • Opportunity to distribute company literature and/or product samples to all Team Run for HD participants
  • Recognition on the official website, www.TeamRunForHD.com

STATE STREET PARTNER: $500 DONATION OR EQUIVALENT IN-KIND DONATION

  • Company logo printed on the official team t-shirts
  • Company logo printed on banner displayed at the event booth*
  • Opportunity to distribute company literature and/or product samples to all Team Run for HD participants
  • Recognition on the official website, www.TeamRunForHD.com

GRAND AVENUE PARTNER: IN-KIND DONATIONS OF ANY SIZE, AND PROMOTION ASSISTANCE

We welcome in-kind donations of any size and promotion of Team Run for HD on your website, social media, online calendar, or newsletter.

  • Opportunity to distribute company literature and/or product samples to all Team Run for HD participants
  • Recognition on the official website, www.TeamRunForHD.com

*Our next goal race, the 2015 Chicagoland Sunset Half Marathon, 10K, & 5K, is an established and popular race that draws thousands of participants, friends, and families, many of whom will be passing by our event booth on race day!

Make a Corporate Gift

All donations are tax-deductible and we will return the favor with some great publicity for you! If you are interested in making a corporate gift, checks may be written to "HDSA" with "Team Run for HD" in the memo line and mailed to:

HDSA
P.O. Box 56172
Chicago, IL 60656

Donate Goods and Services

In addition to monetary donations, we are seeking in-kind donations of goods and services, so we can have items for our post-race booth and swag bags, for meet-up runs, and for FUNdraising events. All donations are tax-deductible and we will return the favor with some great publicity for you! If there is anything you would be able to donate, please contact us at TeamRunForHD@gmail.com.

Wish List


  • Food
  • Plastic utensils, paper cups, paper plates
  • Bottled water
  • Beer
  • Running gels
  • Energy bars
  • Electrolyte drinks
  • Recovery drinks
  • Hats
  • Visors
  • Sunglasses
  • Running tanks
  • Running shorts
  • Running shoes
  • Fun shoelaces
  • Headbands
  • Printing services
  • Canvas bags
  • Compression and recovery products
  • Running rain wear
  • Glow in the dark or reflective gear
  • Water belts
  • MP3 players
  • MP3 holders
  • Headphones
  • Mileage trackers (Garmin or similar)
  • Heart-rate monitors
  • Headlamps
  • Magazine subscriptions
    (Runner's World, Shape, Fitness, etc.)
  • Restaurant gift certificates
  • Massage/spa gift certificates
  • Goods or gift certificates from local businesses

Our Sponsors

Thanks to all our generous sponsors.