Saturday, July 25th, 2015
Volunteer Shift: 4pm – 8:30pm
2046 Lakewood Blvd
Hoffman Estates, IL
Because Team Run for HD is the official charity partner for the Chicagoland Sunset Half Marathon, 10K, & 5K, we are seeking race day volunteers for tasks including checking in runners, passing out water, and presenting medals. In exchange, the race is providing promotional and monetary support to HDSA! If you're volunteering, please meet at the Team Run for HD tent at 4pm. Feel free to contact us at TeamRunForHD@gmail.com with any questions.
Right now, your help is needed to get an important bill that will directly benefit HD families passed into law!
The Huntington’s Disease Parity Act (H.R. 842/S. 968) will revise outdated social security medical and evaluation criteria for determining disability and waive the Medicare two year waiting period, so individuals with HD can receive essential disability benefits they are often denied and receive critical health care in the early stages of the disease.
It only takes 5 minutes to make sure your voice is heard – use these forms to quickly and easily email your representative and email your senators (it will identify your elected officials and auto-populate a message for you!). Learn more about the bill, find your elected officials, and see who is already co-sponsoring the bill here.
Join the HDSA E-Advocacy list to receive emails about HDSA advocacy and opportunities to speak up for HD. Share your HDSA advocacy story to offer your perspective about the importance of legislation to help the Huntington’s disease community and inspire others to get involved!
Earn money toward neurological disease research every time you run, walk, or bike with Charity Miles! HDSA is not currently an option, but we are working on it! The more of you join, the more chance we have of being selected! In the meantime, consider choosing Parkinson's or Alzheimer's since they are similar to HD, and research for one benefits the others.
1. Download the Charity Miles app on your phone
2. Open the app, click the menu in the upper left, then click on Teams
3. Type #teamrunforhd in the search field and when it pops up, click the + icon to the right of it
4. Get moving!
Give to HDSA every time you shop online with iGive! Shop normally with over 1,400 favorite stores and they will automatically make a donation to HDSA when you purchase! You never pay more and they always show you how much you're raising before you buy. Just about anything you buy counts, and donations range from .5% to 20%, varying by store. A typical shopper raises over $100 per year!Visit iGive